Often in “young dementia”, the person with
dementia is working and contributing financially to his/her own
well being or to his/her family. As the dementia progresses, it
becomes more and more difficult to continue working which can
cause a financial strain on an individual or family.
With a dementia diagnosis, an individual may qualify for
disability benefits. One place to start is the Social Security
Administration (SSA). This link will direct you to information
about qualifying for Disability Benefits:
http://www.ssa.gov/pubs/10029.html#part1 The web site
explains, “Social Security pays benefits to people who cannot
work because they have a medical condition that is expected to
last at least one year or result in death.” This site walks you
through the steps of applying for Social Security Disability
Benefits.
Also, check for private disability insurance through an
employer or other third party.
It is important to have as much diagnostic information as
possible when applying for disability benefits. Having
documentation in writing that describes the medical diagnosis
and dementia in detail, as well as how the dementia is affecting
an individuals daily performance, is critical. Consider the
following types of evaluations to assist in this process:
- Documentation from a physician that states the medical
diagnosis and dementia symptoms. This can be a primary care
physician or a specialist like a neurologist.
- An evaluation from a neuropsychologist is helpful in
outlining an individual's cognitive functioning (thinking and
memory skills) that will support the physician’s diagnosis.
- An occupational therapist specializes in daily living
skills (or occupations) and task analysis, and can provide
information regarding what an individual can do for themselves
and the areas where help is needed. This type of information
further supports the medical diagnosis and will help to
clarify the level of disability an individual is experiencing.
- Gather medical articles about the specific diagnosis that
is causing the dementia. Look for information that
specifically outlines the prognosis - a prediction of the
probable course and outcome of a disease or the likelihood of
recovery from a disease. Your physician or other health
professional should be able to assist you in finding this
information.
This type of information is also helpful when considering work
accommodations through the Americans with Disabilities Act.
Besides the routine financial obligations, individuals with dementia
may incur medical expenses that are beyond their means, putting a
further strain on financial resources. Be creative and resourceful and
don’t be afraid or embarrassed to ask for what you need. Consider the
following resources:
- Your local church
- Local community organizations
- Salvation Army
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