The following is a list of online resources for caregivers.  The sites contain information related to providing care, as well as ways to manage and cope with the responsibilities of being the primary caregiver.  These sites are listed below.

Local Resources
Don’t forget - it is also important to check out local resources: 

·        While we are dealing with issues of “young dementia”, your local agency on aging can be a helpful resource for caregivers.  These agencies are regional organizations in each state.  To find your local agency online, use the search terms “agency on aging” and your state name. 

·        Also, contact your local Alzheimer’s Association chapter for resources and support.  Ask them if they have support services that target the specific needs of younger people with dementia.  Go to www.alz.org and then “search by state”.
 

eHope

Our mission is to form caregiving communities which provide non-medical physical, social, and emotional support, for a loved one who faces a life-threatening illness. 

http://www.ehope.nu/defaultM.aspx

This site allows you to build a support network of friends, family and volunteers who will help you with day-to-day tasks that need to be done so that you can focus on caregiving.  Check out their web site and see what a powerful tool this can be.
 

Family Caregiver Alliance: National Center on Caregiving

Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. FCA now offers programs at national, state and local levels to support and sustain caregivers.

Fact sheet: Dementia
http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=569

This link takes you to a long page of information.  Scroll down towards the end and you will find more links to caregiver strategies fact sheets.
 

Helpguide

Helpguide was created in 1999 by the Rotary Club of Santa Monica with active participation by Rotarians Robert and Jeanne Segal following the tragic suicide of their daughter Morgan. Since then, a dedicated team of talented people have collaborated to create a free, non-commercial resource for people in need.

Helpguide’s mission is to empower you and your loved ones to understand, prevent, and resolve health challenges. 

Alzheimer’s Care:

Caring for a person with Alzheimer’s disease or another dementia
http://www.helpguide.org/elder/alzheimers_disease_dementias_caring_caregivers.htm

Support for caregivers of people with Alzheimer’s Disease or another dementia
http://www.helpguide.org/elder/alzheimers_disease_dementia_support_caregiver.htm

Managing Behavior Problems
http://www.helpguide.org/elder/alzheimers_behavior_problems.htm

Caring for a person in the final stage of Alzheimer’s Disease or another dementia
http://www.helpguide.org/elder/alzheimers_disease_dementia_caring_final_stage.htm
 

Alzheimer’s Association

The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

Caring for Alzheimer’s
http://www.alz.org/living_with_alzheimers_caring_for_alzheimers.asp

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